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VICTORIA'S STORY

On April 25th, our daughter, Victoria Messina, was diagnosed with an extremely rare form of cancer called Chordoma. This type of cancer is diagnosed in just one in a million people per year. The odds of children being diagnosed are one in every ten million people, so Victoria could easily be the only 14 year old in the world with this type of cancer. Chordomas form from leftover notochord cells that aren't shed when the spine is forming during the embryonic stage of life. 

 

Once we learned about Victoria's diagnosis from her incredibly knowledgeable ENT, Dr. Todd Huber, we were put in touch with The Chordoma Foundation. They have been by our side as advisors and have educated us on everything Chordoma-related.

 

The Chordoma Foundation made it possible for us to have the world's top Chordoma doctors review Victoria's images at the NIH Chordoma clinic in Maryland, where they collectively came up with a treatment plan to give her the best odds at long-term survival. 

 

Cancer has met it's match in Victoria. Our daughter does not back down. She always has the last word and we expect nothing less from her when it comes to beating cancer. We have been in awe of Victoria's relentless perseverance since she was a baby and we now know why God gave her that gift. 

Please pray for our family and all of the surgeons and specialists on Victoria's care team. This will be a life-long battle, but we believe in God's miraculous healing power and know he's got our daughter in the palm of His hand.

 

Victoria's surgery is scheduled for Monday, June 3rd.

 

All our best, 

Paige, Travis, Victoria and Wren

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