Flying on Faith

While we have known since before leaving Boston, we are just now letting everyone know that there is still 1cm of tumor left after Victoria’s third surgery. The part that’s left was around a corner that her neurosurgeon was unable to see. While that may sound like a lot, the original volume of her tumor was 5cm x 5cm x 5cm, so it’s incredible that they have reduced it down to 1cm x 1cm. 

So, what now? Victoria’s neurosurgeon and radiation oncologist are coming up with the best plan of action. As of now, they’re thinking they will continue as planned and go on and begin radiation. There’s a small chance they will go back in and attempt to get what’s left, but they will weigh the risk vs. reward in making that decision.

Will it work to just do radiation? The answer to that question is we honestly don’t know. There’s not enough research to know what’s likely to happen with Victoria’s tumor since it’s so rare for someone her age to have one. 

What we do have in abundance is faith: faith that God will heal Victoria; faith that Victoria can continue to fight; faith in her team of doctors; faith in her guardian angels interceding on her behalf.

On the plus side of things, it does not look like Victoria will need a spinal fusion. We met with a spine specialist before we came home and her spine is holding firm and remains perfectly aligned.

As for the future, all we can ask is for your continued prayers and, if you feel so inclined, donations to the Chordoma Foundation. There is a good chance that Victoria will need some sort of alternative therapy besides radiation in the future, and every penny donated to the foundation will give her the chance of having that alternative available to her.