RESOURCES

As we work through next steps, we realize that none of this would be possible without the incredible organizations and team of doctors that are working with our family. Thank you to every individual who has played a role in the last few weeks and who will continue to in the weeks and months ahead - we are FOREVER GRATEFUL. 

 

Our hope is that we can raise awareness by sharing our story for this extremely rare cancer that is diagnosed in only 1 in every million people each year. We will continue to update this page with resources that have been valuable to us in hopes that it is for you as well.